Thursday 29 October 2015

Panorama - Britain's Mental Health Crisis (26 Oct 2015)

Panorama - Britain's Mental Health Crisis
With funding cuts drastically reducing bed numbers, Panorama goes inside one of the UK's largest frontline mental health trusts.
Aired: 26 Oct 2015
(BBC iplayer - will probably only work for browsers in UK)
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I haven’t watched this all yet.  It's all a bit too close to home.  J assures me that quite a bit of the focus is on how the lack of beds is managed by allocation teams.

Thursday 22 October 2015

Carer's Assessment

Despite my fears, the Carer's Assessment was less alienating than expected.  A few leading questions were a bit confusing, because they don't like telling you what are  actually eligible for or even provide examples of what other carers use their miserly £20 for.  Apparently me answering that I want them to help J by providing a personal budget for a PA isn't specific enough.  Eventually I pointed out that we are reliant on my mobile phone staying on contract for 24 hr calls. It sounds as though my assessment will be combined with J's.  It's not a great experience listing all the problems we have.  I felt the usual guilt.  Although it was useful for me to start to order in my head what I need to do to fix my finances (for complicated and prejudicial reasons I have avoided the benefits system, but self employment isn't bringing in enough) and they might be referring me for some specialist advice. 

Sunday 18 October 2015

Assessment anxiety

Wasted a lot of time the other night having an imaginary rant with the DWP. J and I are being assessed at the same time (her for a Personal Budget, myself for non-existent extra help for being her “carer”).  I can’t help thinking that they are delaying finishing her assessment so that I can scupper the whole operation with my assessment, by me saying the wrong thing. I really don’t trust them. They are supposed to help, but they've already told J that she might have to do 12 weeks with Inclusion Support, who are just [edit] file carrying tick box monkeys. Waste of money and time.

Wednesday 14 October 2015

When MPs email Chief Executives

A senior nurse at the Community Mental Health Team asked for "a quick word" the other day.  He wanted to address the issue of the lack of phone support in the middle of the night (which ends in J being told to ring ambulances in order to see a mental health professional in the next city which is absurd considering that she is an ongoing outpatient with the local services etc. see posts below).

In frustration, possibly around 4am one night recently (3 hours after the recommended  support lines had shut) J emailed our MP to explain how the lack of help effects her - right at the moment she was suicidal.  She had explained that even Samaritans would usually advise dialling 999, if only for a "welfare check".  What follows is worried paramedics telling her that she must accompany them to a hellish A&E at Leicester Royal Infirmary.  This is the last place on Earth a triggered person should be made to wait for six hours for some part-time burnt out crisis team worker.  J also said that she was aware of my correspondence with the MP regarding the local service failing to provide 24 hour support to mental health patients in the community as recommended by the Care Quality Commission in their last review. With J's permission the MP emailed the Chief Executive of the Leicestershire NHS Partnership Trust.  It's rare to get any feedback from the LPT on anything.  This is an organisation which still claims that email causes a confidential information leak risk.  They've been saying this for over 20 years now.  Come to think of it, they probably think the same way about phones.  Anyhow, the Chief Executive passed the message back down through the LPT and everyone was suddenly taking the matter seriously.  Except that they weren't really.  The senior nurse felt that this was just a case for a "need for clarity" on their part.  Apparently, we hadn't realised that we could leave a message on the voluntary sector answer phone (run by the newly contracted Richmond Fellowship) after 1.30pm when it was no longer manned, and that it would be checked /every hour/ and then somebody would call the sufferer, I mean, caller, back.  Right?   

We explained in less then polite terms that this was still a fucking shit system, of which even the local emergency services were unaware.

Nonetheless, the short term solution was to provide a clearer message on CMHT's answer machine and the Richmond Fellowship's answer machine. 

I again suggested, as with previously useless phone lines in the region (SAP/CRHT) that managers "cold" called them to test them.  The senior nurse, like other professionals before, laughed and said that he didn't work at night and so couldn't do it himself (see how fast that not-my-problem--empathy-cut-off switch is thrown?).  I pointed out that there were plenty of nurses at the Bradgate working night shifts, not to mention other employees on call across the region.  He and J's CPN then sympathised about phone holding queues within the service and also liked the idea of sending senior professionals down corridors at the Bradgate without pass cards to deal with baffling intercom politics, since they themselves had been locked in corridors. 

Incidentally, the MP also sent a very warm and caring follow-up email to tell J how valued she was and how important it was to stay alive and safe.

So here's a tip.  Next time you are in crisis and the support systems are more triggering then helping, why not email your MP? After all, it's a direct line that actually works in the middle of the night. 

Monday 12 October 2015

Ministers accused of failing to keep mental health pledge (BBC 25 August 2015}

Ministers accused of failing to keep mental health pledge
BBC News  August 25, 2015

5 a.m. Thoughts

Written last night and posted to Tumblr. Own thoughts.
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5am. I can’t sleep. This is so stupid. Part of me getting closure on J’s previous admission at the Bradgate MH Unit is for me to write up a sort of review or summary for the NHS Choices website. I think about all of the crap unnecessary things that happened and I get so wound up that I can’t sleep. 
Maybe we should have gone to a civil court about the doctor who walked her to the road when she was suicidal. Why didn’t we complain about every lie/backtracking the matron and doctors said? For every time a doctor and the hospital pharmacy fucked up the prescription in the stupid dispensing computers that took two days to set right? Because we were exhausted and didn’t want to rock the boat. 

Here I am now shouting into a digital paper bag, knowing that this might all be erroneous, because we’ve clearly feel that we’ve been wronged and are therefore biased. Why should you sympathise with a man who sympathises with the arsonists. I want to tear it all down, burn out the failed self congratulatory institutions, but the touch paper (torch paper?) is soaked in the blood of those that have died in the grey areas beyond responsibility or blame. Crap. Crap metaphors. I’m trying to be honest, but anger brings out horrible imagery. Cold fucking bastards.

What’s the point of “raising awareness” around mental health if the professionals themselves are so jaded and crippled by petty misunderstanding and received wisdom of negative diagnosis short-hand? Why ask for help when bigotry pervades the supposed safe places?

Hope for a better tomorrow is not enough. Hope of small improvements and gradual change is not a comfort after being slowly dragged through so much crap. But we’re too sore to make balanced reasonable suggestions, such as “perhaps A&E might be disorientating for a person in crisis” when some poor fucker who has been slashed with broken glass is screaming and swearing the place down next to an elderly lady having a minor stroke and all the drunks too stupid not to fight …

Also in the case of the LPT I don’t believe it’s just about funding. It’s like we’re blind to incompetence when we sadly look to the ground and mutter about how terrible it is for the NHS. Maybe they need to be honest, give up the contract even. Maybe we need to go elsewhere. I really don’t know anymore. It’s like all the babysitters have criminal records, but we have to be broad minded or something.

Fuck it. It’s like fixing a drain in a deluge.

Suicidal man repeatedly turned away by Bradgate Mental Health Unit Leics before killing self (BBC article)



Taken from live news feed. 8 Oct 2015